Living with Epilepsy

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Title : Living with Epilepsy

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Living with Epilepsy

Sometimes living with epilepsy can be lonely. Despite how many of us are out there, people don't talk about it, and it can leave you feeling like you're the only one. I promise you're not. I know that one random girl in Denver telling you you're not alone might not mean much, but it's true. We're all around. We just need to open up and talk about it. When I started to tell people about my epilepsy and how I deal with it in my own life, people started to come out of the woodwork; it was amazing and truly touching, and it continues today. When you share yourself, you help others to do the same, and a bond is created; a bond that can't break, because you helped each other stop hiding a piece of yourselves and thereby live life to its fullest. You can't really live if you're busy spending your time and energy trying to keep yourself a secret. As soon as you can come to terms with your epilepsy and accept yourself for all that you are, a weight lifts off of your shoulders and suddenly you feel free.

The Epilepsy Foundation of Colorado has an ongoing series called, Share Your Story. In each newsletter, people with epilepsy talk about living with it - the struggles, the challenges, the silver linings. Check out the most recent edition (I'm in it, too!): 
Erica Egge moved to Denver from St. Paul, MN in 2009. Erica was diagnosed with simple partial epilepsy when she was seven years old. She spent eighteen years trying various combinations of medications with minimal success and at age 25 decided that she had a long life left to live and owed it to herself to try anything she could to beat her epilepsy. After extensive testing, Erica had brain surgery in January of 2011. She has now been seizure-free for almost nine months. Erica has kept a blog throughout the experience, which she is currently turning into a book.


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